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Tourette Syndrome Awareness Month: A Time to Stop the Stigma

May 29, 2018

Many people think they know Tourette syndrome.  It’s the person who blurts out foul words at inopportune times, like what you see on sitcoms or in movies.  In reality, this particular vocal tic is rare. But the stereotype of people living with Tourette syndrome is unfortunately common.

Cystic Fibrosis Patients Assert Health Care Rights

May 24, 2018

Certain elements are critical to the health care that patients with cystic fibrosis need.  The Cystic Fibrosis Engagement Network has identified those elements in its new Health Care Bill of Rights for Individuals with Cystic Fibrosis, released this week.

ICER Report Offers Little for Women with Endometriosis

May 22, 2018

Only one-fourth of the 6 million women with endometriosis could be treated with a new GnRH antagonist and still meet the Institute for Clinical and Economic Review’s budget threshold, according to a report released by the organization.  The new drug has shown promise in clinical trials to lessen the pain associated with endometriosis, which can cause painful menstrual periods and even infertility.

Access, Disparities Issues Dominate Cardiovascular Health Policy Summit

May 18, 2018

A massive stroke marked a serious change in the weather for Mark McEwen, whose familiar face brought viewers the weather forecast on the 1990s’ “CBS This Morning.” McEwen keynoted the May 15 Cardiovascular Health Policy Summit in Washington, DC, describing how he struggled to regain speech, mobility and fine motor skills.

Where President Trump, U.S. Senators & Physicians Align

May 15, 2018

New research suggests that President Donald Trump, U.S. senators and the country’s physicians may agree on at least one thing: the federal 340B drug pricing program deserves more scrutiny.  Designed to encourage care for indigent and underinsured patients, the program has ballooned into a revenue stream for growing hospital systems.