October 25, 2022
Patients with rare diseases often struggle to get a timely diagnosis and proper treatment.
October 24, 2022
On 13 July 2022, the Alliance for Patient Access’ Rare Diseases Working Group hosted a virtual discussion on primary hyperoxaluria type 1.
October 13, 2022
Tezepelumab is a novel severe asthma treatment that was approved for clinician administration in late 2021. After a few months on the market, however, several Medicare Administrative Contractors made the unprecedented decision to place tezepelumab, a biologic approved for physician administration, on the Self-Administered Drug list.
September 21, 2022
Following the success of the November 2021 focus groups for IgG4-RD patients, the Alliance for Patience Access hosted another focus group to capture additional insights.
May 24, 2022
A 2022 survey from the Alliance for Mental Health Care Access examined the effects non-medical switching has on mental health patients.
March 29, 2022
Perhaps no specialty in American medicine better illustrates the value of patient-centered care – and the costs of obstacles to…
December 21, 2021
Most people have never heard of a rare and chronic autoimmune disease called IgG4-RD. Some even question whether it exists.…
November 19, 2021
Constant and conflicting messages about COVID-19 vaccination leave some autoimmune disease patients uncertain about how to protect themselves. Through national…
August 16, 2021
As the United States fights to maintain hard-won progress against COVID-19, the accumulated traumas of isolation, illness and death pose…
June 30, 2021
How America’s Obesity Epidemic Drives Cardiovascular Disease & Diabetes