Cystic Fibrosis

Cystic Fibrosis Community Celebrates New Treatment Option

February 15, 2018

The Food and Drug Administration approved a new drug that helps address the underlying cause of cystic fibrosis, not simply its symptoms. The drug, a combination of tezacaftor/ivacaftor, is for patients aged 12 and older with certain cystic fibrosis mutations.

Rare Disease Day Spotlights Need for Research

February 28, 2017

Rare Disease Day brings international attention to the plight of patients who struggle with ALS, Gaucher disease, cystic fibrosis and other less common conditions.  This year’s theme is research, a challenge for any disease state but especially for conditions with small patient populations.