May 29, 2019
Cancer patients are breathing a sigh of relief. So are patients with movement disorders. And those with epilepsy, HIV and…
May 6, 2019
Patient advocates want the lip smacking, grimacing and uncontrollable twitching caused by the movement disorder tardive dyskinesia to do more than attract stares. They want it to elicit empathy and understanding.
April 16, 2019
These days, I find myself using some of the same words to describe Parkinson’s as I do to describe the experience of physicians like me who treat patients with the disease. It’s a sad reflection on current health insurer practices.
March 28, 2019
It’s hard to put a price on dignity. Just ask a patient dealing with PBA, or pseudobulbar affect.
February 19, 2019
Add movement disorders patients to the long list of people whose health could suffer under the Trump administration’s proposal to…
January 17, 2019
An incomplete and poorly conceived report from the controversial Institute for Clinical and Economic Review has set its sights on a most unbecoming target: infants with a degenerative, life-threatening neurological condition.
January 9, 2019
Decades after Congress passed the Orphan Drug Act, only about 10 percent of patients with rare diseases actually receive treatment with orphan drugs, a new report finds.
December 17, 2018
The newest proposal to cut prescription drug costs could strip important protections for already vulnerable patients, especially those living in long-term care facilities.
December 13, 2018
Patients with a range of conditions from chronic migraine to overactive bladder can achieve relief from a medication called a “botulinum neurotoxin.”
December 13, 2018
Imagine living with the debilitating pain of chronic migraine, the annoyance of excessive perspiration, or the embarrassment of involuntary neck…
