Rare Disease

How Telehealth Changed My Mom’s Life

April 26, 2021

Watching a patient eat. Asking about family photos on the nearby coffee table. Observing the living space. These are all benefits of telemedicine that help doctors see their patients through a new lens.

Amyloidosis: Rare Disease, Rare Courage

February 26, 2021

For Valerie, it began with shortness of breath and trouble sleeping. Eric found he could no longer stand in the shower. And Janet discovered she could barely hold a pen to sign her name.

Telehealth Isn’t Only for Pandemics

February 8, 2021

I was 15 when I was diagnosed with two rare liver diseases. Growing up in rural Kentucky, that meant countless out of state trips to see specialists. Those trips were a family commitment.