In Their Own Voices: The Lived Experiences of IgG4-RD Patients
September 21, 2022
Following the success of the November 2021 focus groups for IgG4-RD patients, the Alliance for Patience Access hosted another focus group to capture additional insights. Patients from across the country met virtually on July 20, 2022 to discuss their experiences living with the rare condition.
Most people have never heard of a rare and chronic autoimmune disease called IgG4-RD. Some even question whether it exists. But those who live with the disease see its impact in a range of symptoms that can turn their everyday lives upside down.